My name’s Ben and I’m from Brighton, where I live with my wife. I used to be an architect. I’ve got progressive Multiple Sclerosis, which means I have to use a wheelchair because I can hardly bear any weight. On bad days, I get awful pain and cramps in my legs. My left arm only works a bit; my right arm works slightly better, but not much. MiHomecare have helped me out for 12 years now. Back in the day, I was anxious about having care at home so wasn’t at all welcoming when people tried to help me.
How did MiHomecare help me?
Very gradually, one small step at a time, my support workers encouraged me to accept more help – I can be very stubborn and I know my needs aren’t that simple. I also find it difficult to let people know what I want. Funnily enough, accepting help and cooperating with them means they’re able to work out how I can be more independent at home. They make sure that their visits are effective for me because they understand my needs very well.
What difference has it made in my life?
Once, I hated having people in my home but now, I look forward to my support workers’ visits and chatting with them about my life as an architect and all the things I’ve achieved in my life. They’re very good at listening! They’ve learned to set up my possum, which is electronic assistive technology to give it its grand name. This means I can get on to the internet when I’m alone at home.
With this extra support, I haven’t had to go back into hospital and I can spend more quality time with my wife. I’m living at home, thank goodness, and am as independent as I can possibly be.
"I look forward to my support workers’ visits and chatting with them about my life as an architect and all the things I’ve achieved in my life."Ben